The 'Report'....

Well, it told them nothing really. Yep. They couldn't find healthy ganglian but they did find healthy nerve roots. That doesn't make sense. It conflicts. So, the report was sent to UCLA to be reviewed by a pediatric pathologist. They may have to do another rectal suction biopsy. Her dr doesn't expect to hear from the UCLA doc before Friday, at the very earliest. In other words, sit tight through the weekend. We just don't know, and they are a little stumped.

They did agree to let her start feedings. So she had a half teaspoon of diluted breastmilk. Yes, a whole 5ml...not very filling, but it is a start. She will have four such feedings then move on to full breastmilk, then to 10ml, so on and so forth. If it continues as it has today and she tolerates it well, then she will start full strength at midnight. She did take a bottle, with a little nudging. She is ferociously hungry, but knows the feel of the pacifier and also knows it doesn't fill her tummy. So, when we give her the bottle, she thinks it is a trick and won't take it without some serious coaxing. Poor baby.

Dean has to be in San Jose tomorrow early. So, I am on my own. I think it will be fine, but if she quits handling the feedings it will be rough alone for certain. Please pray for his safety as he is exhausted.

I guess we have the cottage tonight because they never called and said one way or the other?

Once again thank you for carrying us in your prayers through this difficult time. I thought she might be home this week, but am preparing for her to be here through Thanksgiving. It would be wonderful if she were to come home before then. But I just don't want to get my hopes up.

Blessings,
Michelle