Friday Evening

Well today has felt better. I think in part it is that Hollyse has been moving a bit and I just see a little life in her. It is really tough when she is motionless all day as she was yesterday.

We do have praises! All the pathology reports showed ganglian (sp?)cells! Woohoo! So, no colostomy bag and that rules out total colonic Hirschsprungs disease AND if she does have it, then it is short distal Hirschsprungs. It would still require removing a segment of her colon, but a small one. We are actually praying this is the case. They did not biopsy that small section (don't know why except it requires a different procedure). She will have a suction rectal biopsy just above the anus tomorrow morning at 8:00 am. Prayers for this procedure to go well are appreciated.

Another prayer is for the edema she has. She has literally blown up with fluid. Her little head is no longer round, but lumpy from the pressure on which ever side she is lying. Her palms are puffy. Her tiny ears look really odd on her huge head. So prayers for her to keep urinating really well are needed.

They are still trying to get blood salts and potassium levels just right. They will not do surgery until this is straightened out. It is a constant adjusting of fluids so not real easy to get right.

As a mom I have to ask for prayers for her not to have any pain. She does have an ulcer now and although she is on meds for it as well as morphine, I still worry about her pain level.

I just love this little baby so much. We all do. We just really want to get through the next few days and get the results from this next biopsy. We really want to know the 'plan' and have a better idea of what to expect.

We have the cottage until Monday, so praise God again for that! I am also praying we know a lot more by then so we can plan accordingly. We really would like to stay close until she is in a better place and the cottages make it financially possible.

Please feel free to share our blog with others who are praying for Hollyse. We know you are covering us in prayer. It is no small thing and we are so grateful for those prayers. I just do not have the words to convey how deeply loved I feel and how much I am humbled by your concern for our sweet baby.

Michelle