Wednesday, August 19, 2009

Do I dare even blog this...

I am hesitant to even start. I am tired and really should just go to bed but I feel the need to update about Hollyse.

It all started last week when she started crying when she would go, you know. She would cry, a lot. By Monday I thought, hmmm...no bowel movement in 24 hours but really cranky. So I made an appointment, which was needed anyway for a growth check.

On Tuesday morning we headed to the pediatricians office. Thank goodness Dean insisted on going so someone else was there to hear all that was said. Her pediatrition was her usual, terrible bed manner self. But, we look past it because she has been on top of things. She didn't care about the crying during BMs (apparently I am stupid because many children do this I was informed). No need to worry about the constipation that is becoming a regular (no pun intended) occurance. Just give her papaya twice daily, it will be 'her' food. Oh, and those enemas her surgeon insisted she have if she hasn't had a bowel movement in 48 hours...that is too often. You CANNOT do them but every 72 hours at most, in fact, no enema use a suppository instead, enema is hard on the bowels. No, she doesn't get a prescription for saline, even though you are out, use pedia-lax. But what is in pedia-lax I asked, the pediatrition said "I don't know". Can I get a prescription for the saline then? She asked "Do you even need a prescription for the saline?" Yes. "No, use the pedia-lax or baby fleet".

We took Holly home, made some calls, found that she had a standing prescription for saline, picked it up and snickered wickedly.

But then the day became night, and I went to a meeting. Dean went to dinner with a friend. Amanda was taking care of Holly. She was grumpy, crying like a wild animal in fact and then had a small bowel movement. She went to sleep. Woke up again, cried like a banshee, had another small bowel movement and shook with pain when her bottom was wiped. Then she woke again, screaming hesterically with yet again, another small bowel movement. Dean came home and I was not long behind him. We found Amanda, upset, with Hollyse on the changing table screaming like someone had tried to do surgery with no anesthesia. I took over, immediately gave her a liquid suppository because I thought there is no way I am getting 35 ccs of saline in her with her screaming and writhing like this. She bawled for another 10 minutes, then had a blow out, then another, and another...and then another in the morning. She quivered and writhed as we wiped her bottom. It was burned from the acidity.

Ya, good thing I didn't wait 72 hours dear doctor who is ignorant of Hirschsprungs.

I mean really? Seriously? Ignore the surgeon and do what you say? I just don't see that happenin' ma'am. I mean, the surgeon is her doctor, and I mean he is THE man. No Hirschsprung patient can be without one excellent surgeon. He's the 'go to' man.

You, my friend, are fired.

3 comments:

Corinne Doughan said...

Poor baby!!! Let me know if there's anything I can do to help.

Val said...

I have to second the above comment : poor baby! How horrible & frustrating to have a pediatrition like the one you described. She sounds almost unfeeling. I pray things will get better. Hollyse is, however, BEAUTIFUL. I love her chub! I'm waiting for Noah to get more :)

Kathy said...

I am so sorry that Holly went through that and I KNOW I wouldnt be able to handle it as gracefully and efficiently as you do. My prayers are with you.

I am so frustrated for you. This Dr. was the only one that took us seriously and got us a diagnosis and a specialist for both Gabriel's heart problems at birth and now Nate's Scleroderma...why is she being so lame and insensitive about this???? I really like her and don't like the one this scene unfolded :(