NICU Rollercoaster

Amanda explained what happened very well. But, we determined that Holly wasn't throwing up bile. Her tummy was distended, but still very soft. In fact, when the nurses first looked at her they thought she looked fine. But after they stripped her down they agreed her tummy didn't look quite right.

I really thought I was losing my mind the last day because I felt like she was doing everything she did the first time. But, she was still eating and her belly looked good. She had stopped throwing up once I got her off the bottles. But, my instinct just said something wasn't right.

We knew we might have to bring her back. Her Dr told us we might need to give enemas if the suppositories weren't working. We just hoped, and prayed that maybe he was wrong.

They plan on doing the rectal section biopsy tomorrow. I am just anxious for them to do the corrective surgery in the weeks that follow. At this point, I wish they were doing that tomorrow instead of another biopsy. I just want that behind her.

She looks good. She had two enemas before I left and they cleared quite a bit out of her. She ate a lot last night, so it is good they are getting all that out. She looked comfortable, was sleeping contentedly when I left. She is such a sweet baby. I am just amazed at her disposition despite all she has gone through.

I hated to leave her, hated it. But, I am exhausted and had no time to get a cottage. Honestly, I don't think I even want one at this point. As much as being away from her is hard, she is in good hands. Dean and I need some serious rest before she comes home because she will need us both thinking clearly.

Dean is wiped out. He drove to Fresno on Saturday @ 4:30 am and just got back tonight at 5:00. He is almost delirious with exhaustion.

My mom and aunt left today. I am trying to imagine we will cope without them.

One of our favorite nurses was there. She is the one who told us about the NICU rollercoaster...slap you, hug you, slap you, hug you....the most abusive relationship you've ever been in. She was right on, little did we know!


Michelle