Day 12 news!!!! Woohoo, real NEWS.

We do have news!

I was able to nurse her for a few minutes. What a gift from God to nurse my baby!

They gave her a glycerin suppository and she pooped, ALOT.

They ended up sending the samples to Saint Louis and we have some news from them, finally. They feel pretty sure she has short segment Hirschsprungs. But they want to do a deeper biopsy that will require general. They will still go in rectally and she will need a few stitches. They plan on doing it Weds morning. She will have to fully heal from the biopsy before they can remove any of her colon, that is if the deeper sample tells them conclusively. So, the plan is surgery Weds morning. Release as quick as she is able. Go home and heal from biopsy (2-3 weeks) then back for surgery to remove the portion of her colon affected by Hirschsprungs. No idea how long she will be here when she comes back, but I imagine 2+ weeks as they initially told us. While home for the 2-3 weeks we will have to use suppositories/enemas to keep her pooping.

They just did an ultrasound of her kidneys due to the blood pressure issue. She had meds for it yesterday but only twice. They reduced the amount of and increased the span better them today. But we just need to know her kidneys are good. She is having lots of wet diapers.

So, maybe she will be home this week. Surgeon said maybe Weds, Dr. said more likely Friday. But we shall see what God wills.

All in all, it is a good day. She is keeping her feedings down. They switched her to a slow flow nipple and that helped. I should be able to nurse her all the time very soon. Although we have another biopsy before us, we do feel that we have a much clearer picture of what to expect in the coming month and we are so grateful for that.

Thank you my prayer warriors! We can all continue in prayer for it to get better and better.

Praise God!!!

Much love,
Michelle and Dean